http://www.facialnevus.com/cms/ FacialNevus.org en-us Thu, 13 Mar 2008 00:25:40 GMT 1440 CPG-Nuke Dragonfly FacialNevus.com News http://backend.userland.com/rss http://www.facialnevus.com/cms/images/fllogo.jpg http://www.facialnevus.com/cms/ http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=22 Hi, I wanted to post an update on what is going on (or lack there of). Unfortunately. someone was able to exploit a piece of code in the software that I use to run the website. This led to some issues with my Internet Service Provider as well as another ISP who reported our site as running a phishing site. While no data was take from our site, I had to lock some areas down and this has caused a real issue trying to upload new pictures. I am currently testing a few other applications and hope to make a decision soon and start the long process of converting everything over. That being said, if anyone wants to see more current pictures of Emma, please let us know. Emma is doing well after her last round of skin expansion. She is really enjoying school and is truly remarkable. Thanks and hope to get things moving along again soon! Aaron, Denise, Emma & Celia Thu, 13 Mar 2008 00:25:40 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=21 Emma had a very successful surgery in Chicago earlier this month. To our surprise, she recovered faster than ever! We let the hospital around 7:00pm after a surgery that didn't start until 11:00am! Her drainage tubes even stopped draining less than 24 hours later. Dr. Bauer placed a 70cc expander in her cheek. As of today, it is almost 50cc's full (Dr Bauer is hoping to get it to ~ 110cc's). I will be posting pictures shortly. While we were at the Ronald McDonald House, we met Klara and her family from Singapore. I have some great pictures of her that I will be posting as soon as possible. She is close to the end of undergoing surgeries and looks AMAZING! Take care! Aaron Mon, 23 Jul 2007 12:30:49 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=20 Well, we received some disappointing news. Emma will need another round of skin expansion. We are looking at mid to late summer to have the expander put in. It will probably be a 250cc expander. Hopefully we can squeeze in mid summer so she can start school a bit sooner. Tue, 01 May 2007 14:06:55 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=19 I am thinking of a redesign of this website. I wanted to get your input. What kind of things do you like and dislike about this site? What really needs to be addressed? Do you ahve any examples form other websites on features or design you would like to see here? Please let me know either via email at gniewek@gmail.com or just post a comment to this story. Thanks for your help! Aaron Sun, 21 Jan 2007 17:18:36 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=18 Emma developed a hole in her skin after just one month of expansion. She had 95/250 cc filled in her expander and it proved to be enough to remove most of the nevus from her face. She will still need to undergo surgeries to remove some small areas ofnevus as wellas making sure everything looks right. The updated pictures can be found here. She is still pretty uncomfortable (this was her second surgery in about a month) but she's pretty tough and will be bouncing around the house very soon. This marks a major milestone in her short life and ours as we will no longer have to go through the skin expansion process again She still has a lot of work to go though, but this is really a giant step forward. Wed, 16 Aug 2006 02:54:44 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=17 I have added some new pictures to Emma's surgery section, created a new Friends section, and added a Picture to the Ronald McDonald House section. If any one wants to have some pictures of nevus friends to add to the Friends section, please let me know and I will add it. Thanks Aaron Tue, 18 Jul 2006 05:15:23 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=16 Hi!!! Emma had surgery yesterday to insert a 250cc expander in her cheek/neck. She is doing wonderful. We even left the hospital earily last night (instead of staying all night long). We are amazed at how well she is doing. We will be posting a few post op pictures soon. Thanks! Aaron, Denise and Emma Wed, 12 Jul 2006 19:16:26 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=14 I just wanted to let everyone know that we are beginning a process to change our domain registrar to a new company in a cost savings move. During the next few days while this is taking place, the website may be down for a short time. The good news is that part of these changes will result in us having a fail over server, meaning if this site is down, you will be automatically redirected to another site. Hopefully the transition will go smoothly and nobody will notice any problems. Thanks Aaron Tue, 07 Mar 2006 13:17:35 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=13 Well, Emma, was not quite ready for surgery last month, so we reschuled for the spring. Hopefully this will be her last round of expansion surgery! Unfortuantely, due to the timing, we will not beable to go to the Nevus Outreach confrence in Texas. Just wondering if anyone is planning on going. I know that when we went to the one in Columbus two years ago, it was a great experience. Tue, 14 Feb 2006 14:06:01 GMT http://www.facialnevus.com/cms/index.php?name=News&file=article&sid=12 Good luck to Nora who is undergoing her next surgery. We wish you a speedy recovery and pray everything goes well. Wed, 14 Dec 2005 03:09:34 GMT